The Shoalhaven community has rallied around seven-year-old Rosie Brkic.
The Nowra youngster, who will turn eight in April, has experienced more than most in her short life.
The daughter of Andrew and Stephanie Brkic, Rosie was diagnosed with autism as a two-year-old.
She was later diagnosed with Bardet Biedl Syndrome, a complex disorder that affects many parts of the body, and is characterised by obesity, a loss of sight and in some cases, kidney failure.
A special fundraising golf day, 'Chip in for Rosie', is being held at the Worrigee Links Golf Course on Friday, April 3.
Rosie's grandfather Jason Angus said the family has simply been "overwhelmed by the community response."
The event is already sold out with 138 players, plus many more on the waiting list. Sponsorships for holes, tees etc and the donation of items for a massive auction has been incredibly generous.
"We are just totally blown away," Mr Angus said.
"The community has got right behind the day, be it players, sponsors for holes or donors.
"We have been overwhelmed by the support.
"Especially after everything the community has gone through with the recent bushfires and floods.
"The amount of support from the local community, and in particular, from the many customers of Shoalhaven Signs, a business the family owns, has been incredible."
Among the many prizes up for grabs on the day will be a car from Country Motor Company for a hole in one.
While the golf day is full, tickets are still available for the luncheon and auction at the Stableford Room at the Worrigee Sports Club.
They are just $50 and there will be some fantastic items set to go under the hammer including NRL, V8s, AFL, cricket items and even a surfboard signed by two-time surfing world champion Tyler Wright.
For more information or tickets to the luncheon contact Joel at: firstname.lastname@example.org
Here is Rosie's story -
Rosie's life has been unique and is told on the Facebook page, Rosie's Best Life - Rosie loves playing Lego, taking family trips, music and telling crazy jokes.
In those ways she is just like any other seven-year-old.
Telling Rosie's story is not easy, as what has become normal to her family, does not seem normal to others.
Rosie has always been as she is - the road has been more than challenging. No speed humps to cross, just mountains.
Rosie's first two years of life were filled with tantrums, tears and questions, which led to her first diagnosis of autism.
Hence the long road of therapies began.
When she spoke her first word it brought joy and hope back into the family home which has always been filled with extended family.
But Rosie's diagnosis did not answer all the family's questions and it wasn't until her hospitalisation in 2016 doctors discovered her kidneys were malformed.
After a year of invasive and traumatising tests it was apparent that her kidney function was deteriorating.
Rosie's world became full of doctors, hospitals, operations, diet restrictions, scans, blood tests and medications.
There were now answers to many of the questions, but not to all.
Doctor's then started genetic testing, which proved fruitless at first.
In late 2017 after the arrival of her brother Benjamin, a phone call direct from the geneticist changed the whole direction of Rosie's care.
Rosalie was diagnosed with a genetic disorder 'Bardet Biedl Syndrome' - a complex disorder that affects many parts of the body, which is characterised principally by obesity, a loss of sight and in some cases, kidney failure.
It was an answer, an answer to why Rosie could not see well, why she was chubby, why her behaviour was unique and why her kidneys were failing.
Rosie is losing her vision, she does not comprehend what is happening to her.
She does not cope with people touching her, she is scared and traumatised because of the medical intervention of the past years.
Rosie just wants to play Lego with her best friend Patricia, she wants to watch YouTube and most of all wants to eat Happy Meals and drink frozen Cokes.
For the past seven years the family has been trying to do what is seen as right, prolonging life.
Rosie has taught them that living your best life now is not necessarily your longest life.
Rosie is happy, she still doesn't understand what is happening, and she certainly doesn't miss those blood tests or hospital visits.
She is living at home now under the care and guidance of the Shoalhaven Palliative Care doctors and nurses, her family are unsure as to how long her little life will be.
Doctor's have said don't wait to do anything........do it now.
Her level of care is slowly increasing, she is extremely tired and always hungry.
We would love you to be involved with giving Rosie her best life.