Tamara, her husband, and her father will set out from Greenwell Point in February 2020, walking to Smithfield over three days.

The trio aim to raise funds and awareness over the 200 kilometre trek for Scleroderma NSW to assist with research in finding a cure to the disease.

Scleroderma is a disease of the body's connective tissue. Scleroderma means 'hard skin'.

The disease has been described as "the disease that turns you to stone."

Tamara's mum, Tricia Rainbow-Noack was diagnosed with the disease four years ago. Although approximately 5000 Australians have been diagnosed with scleroderma, not much is known about this disease and there is no known cure yet.

"It has been described as feeling like you are a vacuum-sealed bag where your skin gets hard, it restricts the movement and squeezes your body together. Your body feels like it's suffocating," Tamara said.

Tricia and her husband spent a lot of time in the Shoalhaven and are part of a local fishing club. The walk from Greenwell Point north will be a challenge, but Tamara said the family has started physically preparing.

"It's a huge task as we all work full-time office-based jobs. We are in the ramp-up phase so we are waking up at 4am to complete as many kilometres as possible, and then walk after work or on our lunch breaks," she said.

"Dad has just turned 60 and is leading the way in steps walked per day, there is no stopping him."

The trio completed a 520 kilometre trek last year over 14 days and raised $30,000 for research.

This year they'd love to see that figure hit $50,000.

They're sharing their journey on Facebook at "500,000 Steps for Scleroderma". Donations are gratefully accepted.